Tuesday, April 1, 2008

Please Pray



My mother goes to Clifton and she and my dad are in the process of joining. She is in a wheelchair and they sit in the back of the church when ever she is well enough to come.She has a rare form of muscular dystrophy called Ocular-Pharyngeal dystrophy.This disease first shows up in the muscles of the face and spreads to the limbs.It is very slow progressing and the disease itself should not shorten her life but complications can.She has suffered greatly in recent years from the complications.She can no longer walk and is bound to the wheelchair.She has had a feeding tube for the last 13 years and in that time has received all of her nutrition via the tube as her swallowing muscles have been affected. She has had numerous hospitalizations including a trache that was recently removed. Her biggest problem is that the sphincter muscle in her esophagus that closes when we cough or strain or bend over has deteriorated to where it does not work at all and she has constant possibility of having reflux of her stomach contents that she ends up aspirating on due to the fact the other sphincter muscle that closes off the esophagus to the lungs also has deteriorated so that when anything comes up towards the mouth it first goes into the lungs.She had an episode of this happening last Friday and has not recovered well from it.She is very weak and is going to the lung specialist tomorrow.Please pray for compassion and wisdom for the doctors.Please pray for Gods plan to be clear. Please pray for peace for all of us as we go around an unknown corner.My mother is the strongest person I have ever known.She has been a constant example of Gods strength being shown in our weakness.She is a very giving intelligent,kind,thoughtful woman that is ready to meet Jesus.If you see her in church don’t mistake her frown for sadness.The muscles cannot reveal the joy that Jesus has put in her heart.Don’t mistake her quiet voice for shunning for if she could she would tell you of all the wonderful ways God has reveled Himself to her through her suffering but she would never call it suffering.My father has been a perfect example of unconditional love.They celebrated 50 years of marriage this year and he shows his love for her everyday as he gently and carefully cares for her.Sorry to have gone on so long I just wanted my church family to know something about my mother.

No comments: